2018 Travails

Last year, 2018, started out like any other year for me and my dad. We had a rhythm going of me taking him to doctor appointments and following those up with grocery runs and sometimes medicine runs at the local Walgreen’s.

At the beginning of the year, my dad was grossly overweight. It hurt for him to walk very far, and a friend of his who stayed with him the first month and a half of the year got Dad fixed up with a cane. My dad likes toys that bring attention to himself, so he was thrilled with the purchase.

During my dad’s friend’s stay, dad had a few doctor appointments, and his friend wound up playing a bit of nursemaid to Dad. Not the fun time he was expecting, so he left a month early to head back to Wisconsin. That broke Dad’s heart and he vowed he’d take a trip up to see his friend during the summer time to get out of the Florida heat, which he did.

I planned and saved for that trip, and I prayed that I could trust dad to not drink his way up to Wisconsin the moment he stepped foot into Jacksonvile Internation Airport and out of my sight. My trust was misplaced, because the moment he found a place to whet his whistle, he started drinking. In the little time it took to fly from Jacksonville, Florida, to Green Bay, Wisconsin, Dad got plastered. And plastered he stayed for the whole four weeks he was away.

In the meantime, I was dealing with flooding in Dad’s apartment. Apparently, shortly after Dad left for vacation, several pipes burst in the ceiling and flooded the place for so many days that water was pouring out the front door and collecting into a three-foot circular puddle.

By the time Dad returned, the apartment had been put back together. Too bad Dad wasn’t the same. He had money left over from his trip and he started sweet-talking neighbors into taking him down to the grocery so he could buy his prescriptions (which come by mail) and he’d come out of the store with a six-pack or bottles of liquor. He stayed pickeled for two-and-a-half weeks. In that time, he managed to get me taken off as his. Social Security payee, which meant I had no way to pay his bills, save out of my own pocket. In the heat of all this, Dad wound up having a heart attack.

While in the hospital, Dad’s kidneys started failing, and I had to remind his doctors that Dad was a DNR–do not resusitate. After about three weeks in the hospital, he was transferred to a Life Care Center for rehab. He lost loads of weight and though he was not sure on his feet, a fall risk, he did his best to walk.

Dad loved it there. I was in the process of making his stay permanent, when I got talked out of it by my brother and boyfriend. Since Dad’s been home (October), he’s been an absolute nightmare. He wants spending money. He wanders for miles around the area with his walker at all times of the day and night. He consorts with questionable people who drink alcohol in public. He sorts through ashtray bins to see if there are any butts he can smoke.

I can understand Dad wanting to have spending money, but with him his spending money will be used on booze and cigarettes, two things that are contraindicated with all his medications. Not to mention he’s a nightmare when he’s drinking.

On top of all this, his paranoia has set in. He’s accused me of comeing into his apartment and stealing from him. What, exactly, I don’t know. There isn’t anything over there that I could possibly want. He surrounds himself with junk. Actual junk that he’s picked up off the side of the road and out of the garbage. We had a cleaning lady come in last week and remove all the garbage, clean the carpets, and rooms. He probably just can’t find some special junk he was partial to and is blaming me for its disappearance.

I’m taking him in to see a neurologist on Tuesday to determine if he’s had a stroke, if he’s developed pseudobulbar affect and dementia. It’s not going to be a fun trip.  I’m going to have to ask the doctor to help me get him a psych eval for him. We need to build up the case that he needs to go back into long-term care and stay there. His activities are too risky. He engages with sketchy people, one of whom stole his cell phone. He has a history of this, but it’s usually when he’s drinking. I just feel as though I’m dealing with a drunk every single day, and it’s affecting my ability to create. It’s affecting my relationships. It’s affecting me. I need someone to help me get him in a facility where he will be well taken care of, safe, and where he will have lots of activities to keep him busy and happy. That’s all he really wants at the end of the day is company and things to do and see.

We’ll see what this week brings.

How About Lunch?

These past nine days have given me a new appreciation for how my dad lives out his life. I’m pet-sitting for a friend. Since I have six pets of my own and a small-ish house, I sit for the pets at my friend’s house.

My friend who has no television.

I had no idea how important television was to me until I didn’t have access to it. Before you judge, I don’t use television like other people do: sitting in front of it for hours on end to escape the day. No, I keep it on at a three or four volume level–just low enough so I can hear some voices, but not loud enough to be able to get interested in any show.

I’m a writer, so I work at home. What I do is lonely enough. Though I turn off the television when I’m really concentrating on something complex, I find that I have to have the thing on the rest of the time.

And I know why: I crave the sound of voices, even when I don’t understand what they’re saying. It’s people contact for someone who’s shut off.

That’s what my dad is: shut off. If you’ve been reading this blog, you’ll know that my dad’s at the age where all his relatives, save his children, are dead. His friends are dead, save one. He needs his television to connect with the world when the world is too busy to seek him out.

Right now, I’m his world whether I like it or not. It’s up to me to help him connect and keep his connections so he doesn’t spin out into depression. It’s tough. We’re not close. We have basically never lived together. He had little part in my life until he needed someone to care for him. Yet, here we are.

I’ll ensure dad keeps his television going. I’ll do what I can to ensure he keeps up with his one last friend. And I’ll do better at reaching out and connecting with him myself.

How about lunch?

 

A Sad End

It’s interesting to see dad’s friendships in his later years. Most of his friends are either dead or not talking to him–a result of how he lived his life, i.e. drinking too much, getting into trouble, making a nuisance of himself. His constant friend has been one of his oldest friends, Big Jim. Jim and dad talk every day, several times a day now that dad is living under my care, not drinking, not getting into trouble. Jim, himself, stopped drinking almost five years ago, so their friendship is one that I encouraged.

When Jim asked to come down to stay with dad this January through March to escape the harshest part of what a Wisconsin winter had to offer–well, part of me was hesitant, because I didn’t know if I could believe Jim when he told me he’d stopped drinking so long ago, and the other part of me thought it would be a great idea. Dad’s lonely. He has no one down here. All his family’s dead, save for my brother and me. My brother, long ago, told me dad was my responsibility as he’d already done his duty taking care of grandma, dad’s mom.  Other than a once-every-few-years visit, my brother and his family would not be a source of entertainment. I’d made it known after dad’s last round of drinking that I wouldn’t be a source of entertainment, either. I’d take care of him every other way, but he’s spent his last dime of pity with me. So, this visit by Jim, well, that sparked some life into dad. I was glad for it. Glad for him.

Big Jim arrived ahead of schedule, December 28th. Dad was giddy. He called me several times every day to tell me what they were doing: going to Wal-Mart and riding the carts around the store, going to Target and Publix and Winn-Dixie to do the same. Jim’s about 400 pounds. Dad’s short and about 250 pounds. I can only imagine what they looked like tooling down the aisleways.

They went to DXL to buy some new clothes for Jim (he’s about 400 pounds, dad’s about 250 pounds).  They went to Batteries+ to get a new phone battery for dad’s phone. They’d go out to breakfast every morning to different delis as well as iHop and Denny’s and Golden Corral. Sometimes they’d also go out for lunch or dinner, too. Jim cooked dinner. Dad says he doesn’t know how to cook, though I know he does. He makes chili and vegetable soup and he can make a roast in a Crock Pot.

They’d do laundry every few days and wash bedding every week. They’d go sight-seeing. Historic St. Augustine, The Alligator Farm, driving up and down US 1 to see the remnants of Hurricanes Matthew and Irma. They’d sit out at the pool, (yes, in February), and get sunburns.

I have to admit, I didn’t go over any more than was necessary. My other half and I went over early on because they couldn’t set up the flat screen Jim gave dad. I’d go over to put minutes on dad’s and Jim’s phones. I brought them Girl Scout cookies. I’d pick dad up for his medical appointments.

Dad’s last appointment was with an oral surgeon to have five teeth extracted. I dropped dad off at his apartment and left to get his prescriptions for pain and antibiotics, and in that short amount of time, Jim let dad know that he was going to head back north, a month early. He said his roommate was in an accident and he had no transportation.  My immediate reaction was, he’s never heard of Uber, Lyft or a plain ol’ cab? He’s a much younger man, I think he’s my age, mid-fifties, didn’t he have friends who could run errands for him?

I’ve known Big Jim my whole life. This this the first time I think he lied to me. I don’t believe his friend was in an accident. And if he was, I don’t believe he had no other resources he could tap for four weeks than Jim. I think Jim wanted to leave. I think the thought of playing nursemaid to dad for a couple of his remaining weeks here was the kicker. Knowing my dad, I know dad let Jim do all the cooking and cleaning, let Jim instigate it all. Dad’s not clean, not tidy. He doesn’t clean up after himself well. God love grandma, she didn’t either, so he comes by the bad habits honestly. Jim is very clean, nearly a germaphobe. He’s able to take care of himself–I believe he as at least two pensions, if not three, and he saved (an inherited). Dad’s lost everything he has three times and now I control what funds he has. I think Jim just saw a different dad, and he wasn’t having the fun with an old friend he thought he would.

So, I come back from getting dad’s prescriptions. Dad tells me he’s losing his roommate. He’s pale. His voice is choked. In the same breath, he tells me he’d like to go up to Wisconsin for a few months in the summer. Jim tells me his excuse. I honestly felt bad for dad. He’d had so much fun every single day for two months, and now he knew it would all come to a halt. He’d be alone every day and night. I’d see him every other week, and maybe a couple times in-between, to get groceries, and that would be it. He would have nothing to look forward to except watching television every day.

My better half and I plan to take him out, if he’ll come out, to try to lift his spirits. I don’t know that I’ll sanction dad going North. I don’t know Jim’s roommate, and now, I don’t trust Jim.

 

It Begins

It’s a wonderful thing to have a good friend you can count on, to talk to, reminisce, and just touch base with. It’s even more so when you’re looking at the finish line, I think. For Dad, most of his “friends” are dead. His family–mother, father, brothers–are long since dead. The last man standing for Dad is his friend, Big Jim. Through all of Dad’s shenanigans, Big Jim stuck around. Never judging–not really helping, either, but he never added to Dad’s problems. Big Jim’s been a steady guy. Always had a job. Never sucked off Dad who also always had a job unlike every other “friend” he ever had. Saved for retirement. Cared for his siblings through their health issues. He’s also always been good to my brother and me. That’s why I didn’t mind so much–all right, I minded a little–when Dad told me Big Jim was coming down.

This past week as we awaited Big Jim’s arrival, I could see a change in Dad. His spirit was lighter. He wanted to do things. I noticed his apartment was significantly cleaner. He called to have me take him to the barber. He called to have me take him to the grocery. (Of course, he could have done the barber and the grocery all in one trip since the establishments are directly across from each other–I offered–but he didn’t).  He wanted to know how to make chili so he could have a pot ready for Big Jim when he got in. I printed off a good Betty Crocker version, which was one of the easiest, got Dad some spices and a ring of measuring spoons, and let him go to town.

Each day Big Jim traveled, Dad called me with updates. He’s in Louisville. He’s outside Atlanta. The closer Big Jim came, the more calls I received.  I appreciated Dad’s enthusiasm, but I grew apprehensive the nearer Big Jim came. How were my responsibilities going to grow? Will the boys get into trouble like they had before? How much time will I need to devote to the two of them? How much will my work suffer?

It didn’t take long for me to find out that I would be called upon. Big Jim was lost. He missed his exit and got twisted up. He called Dad for directions. Dad, who hasn’t driven since the ’80s, had never been where Big Jim wound up. Dad called me for directions to relay to Big Jim. Like that was going to work. Dad couldn’t really explain where Big Jim was. Why Big Jim didn’t just call me directly, I don’t know. He had my number. I had him describe where he was, and I thought I knew where he was. Not more than a few miles away if I was correct. I stopped writing, hopped in the car, and headed out. I found Big Jim parked at a McDonald’s about six miles away from Dad’s place (and mine).

Getting Big Jim to Dad’s was torturous. He doesn’t drive more than 25 or 30 miles per hour. If he drove that way all the way from Wisconsin, it’s a wonder someone didn’t ram him out of frustration.

As we pulled in to Dad’s, Dad came barreling out (as best as he could barrel) to greet Big Jim. It had been years, maybe since 2001, since they’d seen each other. We each unpacked the back of the car and made our way inside.  Dad was jabbering. Big Jim was giggling. I just stayed back and watched. We gave Big Jim the nickel tour of Dad’s apartment, and the boys sat down to rest. Within minutes, Dad remembered how to play host and the boys sat down to chili and Diet Cokes.

The next day, mid-morning, I got a call letting me know where all the two had been. The diner, Home Depot. Turns out Big Jim brought down a flat screen so they could really enjoy their t.v. time. Also turns out neither of them knew how to hook it up. I had to turn to Andy to ask if he would mind hooking up the thing for them. It’s a bother. Dad’s been a weight on me since before Andy and I met, and with all the things Dad’s put me through, Andy doesn’t exactly appreciate being tapped to help. But he always helps. With the aid of our own HDMI cord, Andy was able to get the boys set up. Later that day, Dad called to let me know Big Jim and he decided to hire a maid–dad’s old caretaker who’s pushing 90 if she’s a day. I could only roll my eyes. There’s no reason two grown men can’t clean a one bedroom apartment on their own.

The following day, the boys were off to the Batteries Plus store to buy a phone battery for Dad. Forty-two dollars. Big Jim bought it. I’ll have to repay him. Dad isn’t trusted with money anymore, though I believe I may start giving him some so Big Jim doesn’t get stuck paying for everything.

I don’t know. That’s a big step. For me as well as him. There’s a matter of trust that he won’t try to buy everything, which is his mode of operation. I have to preserve his funds. He’s lost everything three times now. I’m trying to rebuild for him. I know it’s his money, but it’s my sanity that gets strained when it comes to Dad’s funds.

We’ll see.

Taking the train to nowhere

Early 2011

What is it that stops you in your tracks?  For the past several weeks – several weeks – I have been trying to think of how to describe what I have been experiencing since I brought my dad back to Florida.  It’s not so much frustration as it is pressure, but not the kind of pressure that breeds anxiety.  I’m not anxious.  I know what needs to be done to move ahead, but that’s just the problem.  I know.  I know, because I’ve done it before, and I know not one piece of what I have to accomplish is going to be easy or appreciated.  It’s that knowledge that has my stymied.

If you can, imagine yourself inside a ball that is filled with that gooey stuff inside a stress ball.  I feel as though I’m inside that ball.  I’m a lump that gets manipulated by a huge hand.  Each finger is a different stressor and I’m desperately trying to press myself back into relative shelter in the palm.

It’s just not working.  The fingers pressing me into contortions all over the inside of that ball.

Every breath I take, from the moment I wake until the moment my head hits the pillow (notice I don’t say “sleep”),  I feel the atmosphere compressing that ball.  Think about it:  the force of everything compressing equally all over that ball.  I’m in the middle, and I can’t move.  I can’t breathe.  I have to heave a sigh just to take in air, otherwise, my breathing is so shallow, I have to think myself into taking a breath.

My mind feels suspended.  There really isn’t another word for it.  Blank doesn’t quite describe it, neither does empty.  I feel too much inside my head, see too much.  The sense of overwhelm is like another layer of skin and it paralyzes me.

Don’t get me wrong, to look at me, you wouldn’t know anything was wrong.  I’d strike you as too quiet, aloof even.  All business with a pleasant face.  My humor is dark, biting, even self-deprecating.  I’d make you laugh, but only so I can get you to go on your way.  I’m the queen of placation.  The problem is that it takes every ounce of energy for me to emit that facade of interaction.  I would receive no energy from you.  I would only be throwing my energy at you to give you whatever you need to get you away from me so I could force myself to check off the dad-tasks as quickly as possible so I can accomplish at least one thing for myself.

It doesn’t always happen, the doing something for myself part.  That’s why I need my notebook.  I need my notebook to remind me what I need to do as much as to show myself what I have done.  Kind of a proof.

I have too much to do.  Dad is a 24-7-365 job.  Even though he’s in his own apartment, he’s living on the other side of my woods.  He and the dogs will pop over at various times throughout the day to visit.  Dad just wants to tell me about his day and show me an ungodly number of pictures he’s taken of virtually nothing, and I can’t stand it.  There’s no phone call before he comes.  There’s no sense of respect that my work cannot be interrupted and restarted, because a train of thought is fleeting, and writing is all about stringing together a train of thought.  I’m paying for his life right now.  His life and mine, and I can’t pay out what I don’t earn, and I can’t earn if I can’t think.

It’s a boundary issue, I know, but I also know that it’s going to take months to get him to relearn boundaries.  The last time I moved him down with me, it took about three years.  I know what I’m doing this time, so I’m praying it’ll only be a matter of months.

Please god, let it be a matter of months, because my nerves won’t stretch out any longer.

 

A Dawning Realization

My dad’s best friend, Jim, is coming for A Friendly Visit in January. He’ll be here for three months.

Earlier today, my dad called me to let me know that Jim will need to have a doctor when he comes down, because he needs, among other things I’m sure, to have his blood drawn every month.

No problem. I can get our doctor’s information to Jim.

Hours pass.

I sit down to prepare my writing plan for this week, and it dawns on me that I am now going to have to take care of–at least in part–Jim’s medical needs, too. It’ll be like having two dads to care for.

I truly don’t mind overseeing these two’s medical care. I’d rather know what’s going on with them than not, so I can make certain they’re not doing anything to harm themselves–which they will. Fifty-three years of experience assures me of that.

It’s just that I also realized that it’s not going to stop at medical oversight. Jim will have a vehicle. The two of them will want to go on road trips. Neither know where to go around here, so it’s going to be up to me to be their human GPS, since neither has a smart phone.

Is it harsh to say I don’t have the time to play travel guide? In truth, I don’t have the time. I have writing and editing and consulting to do. I have my own ailments to deal with.

Neither do I have the inclination. Dad, as you know, was never around when my brother and I were growing up. He wasn’t a part of our lives as we grew into adulthood, because he was busy being a drunk, getting into trouble (read: sitting in jail), and going through wives and girlfriends (sometimes simultaneously). We didn’t want to be around him.

Now, I’m faced with these two. Who, together, will get into trouble. They will act like little boys, as they have done for as long as I can remember. Will giggle when they’re caught.

And I find myself unable to see the humor in everything that’s going to come next.

 

Rough & Rushed

December 12, 2010

Rough and rushed.  That’s how life feels right now.  Since before Thanksgiving, dad has been my focus.  Dad’s safety.  Dad’s health.  Dad’s finances.  Dad’s living conditions.

Since I first heard from Moira, Dad’s probation officer, getting Dad to Florida has been my priority.  At first, I only planned to have him down here long enough to get him evaluated by his doctor and get his social security money out of suspense.  When I arrived in Sanford, North Carolina, I didn’t try to contact dad.  I had too many things to do in too short a time.

Hate to admit it, but he would have just been in the way.  I needed to meet Moira, the detectives I’d worked with when he was missing, and the bankers who first alerted me to his situation.  I wanted to thank them.  I wanted to have us each put a face to the phone and email conversations we had over the past several months.  I have to admit, though, that I had an ulterior motive for wanting to see them all in person.  I wanted them to see me, see that although my dad may look and sound like white trash, he wasn’t.  I wasn’t.  In my mind, if they saw me, heard me, they would understand that Dad always had competent help at hand.  All he ever needed to do was reach out, but he never did.

My fault, that one.  The day he told me he wanted to move to North Carolina, I told him that if he did, “Don’t call me when you get into trouble.”  Other than when Blackie, his dog, was stolen, I rarely heard from him.  When I did, he rambled, and I knew he was drinking.  Many times, I didn’t take his calls.  Just let them go to voicemail.  If he called too often, I wouldn’t listen to my messages.  I couldn’t.  I just didn’t want to hear his overly long messages that told me nothing more than he wasn’t in his right mind when he called.

Should I have cut him off like that, taken away his lifeline?  I think yes.  His neediness and drama had taken a horrible toll on my life, my work, my health.  His very presence stymied my creativity.  I’m a writer.  I’m an editor.  Creativity is what gives me life in every sense of the word.  Though I published, the work was no longer fun.  Only when I hired help for him did I finally find fun in what I do.  When I made the decision to bring him back here, I made the decision to temporarily take the fun out of my life again.  I know the process this time, though.  The downtime will be weeks instead of months.

Day One: Our first stop for him once we arrived in the Sunshine State was to see his doctor, (I’ll call him Dr. Brennan).  Before we went to Social Security, we needed the doctor to sign on a medical form to testify that dad is unable to handle his finances.  It took only moments for Dr. Brennan to say he’d seen enough.  Dad didn’t stop talking the entire time we were in the office.

Then, it was time to go to the credit union to set up his accounts and get the proper paperwork started for the next day’s visit to Social Security.

After that, the grocery store for some staples he could have in his hotel room.

Day Two: The Social Security office visit was like stepping into hell. The place reeked of body odor, even though it was wintertime. People’d brought their children with them. Why would anyone do that? The wait in the SS office is going to be at least three hours if not longer, and there’s not a child on earth who can sit still, let alone be quiet, for that long.  The place itself was bulletproof-glassed and security guarded up just enough to make me feel uneasy stepping inside. What kind of people do they service, anyway?

Once at the counter, the man behind the glass did his level best to make me out to be a child who was going to take advantage of the old man next to me. “Does your dad owe you any money?” He did, about $25,000, but I didn’t say that. “Will you be getting paid for taking care of your dad’s finance or anything else?” Uh, no. The man doesn’t make enough to pay me, let alone pay me back. I just found the little man’s attitude and tone to be offensive. He was, however, quick to get dad set up as we had already been to the credit union and had the account numbers at hand.

Day Three: Clothes shopping. The urine-soaked pants had to go, as did the ill-fitting shoes and women’s sweater and coat dad refused to take off. He did, I must say, find a pair of pants (not his size) laying beside the road that he actually thought I was going to let him wear. I guess that counts for something. The pants were new to him, after all.

Day Four: Forced shower. Threw out old clothes so he had to wear his new ones. Then, off to visit apartment complex after apartment complex after apartment complex. I wanted to try to get find him something he could afford with just his General Motors pension check so we could start saving his Social Security check once it started coming again.

No luck.

With him just getting out of jail, and that jail stay being for passing bad checks, no one–at least on the good side of town–would touch him. In the end, I took him back to where he lived before, the complex right on the other side of my woods. Thankfully, the staff was the same. They all loved dad (who didn’t, right), and they let him come back. I, of course, had to sign for him…

We wound up putting dad in a two bedroom, second-storey (yes, that’s spelled correctly) apartment. Even though he had no furniture, only my air mattress and a couple camping chairs, dad was thrilled to move in immediately.

Now, all I had to do was start furnishing his life. He already said he’d like to get another dog. I could start on that Day Five.

It’s going to be a long rest-of-the-year.